Fibromyalgia, Hypothyroidism, Thyroid Hormone Resistance

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The Metabolic Treatment
of Fibromyalgia

by Dr. John C. Lowe
Readers' Comments


Dr. Lowe and Vicky Massey's presentations in Puyallup and Fife, Washington (see next news item below) were a success! The presentations were attended by patients, patients' loved ones, massage practitioners, naturopathic and chiropractic physicians, and a dentist. Dr. Lowe and Vicky mainly covered information on the metabolic bases and treatment of fibromyalgia. They also discussed proper physical treatment for the fibromyalgia patient, and why many fibromyalgia support groups are obstacles to patients' improving. Most  importantly, they emphasized that most patients today can have realistic hope of fully recovering from fibromyalgia—as long as they abandon conventional medical care and undergo proper metabolic treatment. 

Dr. John C. Lowe and Vicky Massey, LMP
to Speak in Seattle, Washington Area

Register for the Workshop

Dr. Lowe and Vicky will give a presentation and answer questions on Saturday, September 28, in Puyallup, Washington. On Sunday, the 29th, they'll conduct a more intensive workshop titled How to Recover from Fibromyalgia in Fife, Washington. Both locations are in the Seattle area. 

On these two days, Dr. Lowe's main theme is one he's emphatic about—that is, despite the failure of rheumatology researchers to comprehend the nature of fibromyalgia, and despite their failure to effectively treat fibromyalgia patients, most patients with a diagnosis of "fibromyalgia" no longer have to suffer. Metabolic rehab lastingly frees most patients from their symptoms. (When patients treated with metabolic rehab were studied one-to-five years after their treatment, they had maintained their improvement or recovery.) 

In their presentations, Dr. Lowe and Vicky will explain how patients improve or recover with metabolic rehab. Vicky (licensed massage practitioner and member of the Professional Advisory Board of the Fibromyalgia Research Foundation) is an ideal person to explain how to recover. She accomplished this a couple of years ago with only little help from her doctors, and she remains healthy. 

The Seattle area presentations are the first of many public appearances that members of the Foundation will soon be making across the United States. Involved members will include Dr. Lowe, Dr. Gina Honeyman-Lowe, Jackie Yellin, and Vicky Massey, LMP.)

Read more about Dr. Lowe and Vicky's presentations
 & register to come
.


Mary Shomon’s New Book,
Living Well With Autoimmune Disease,
Available Soon in Bookstores

Within a few weeks, Mary Shomon’s new book Living Well With Autoimmune Disease will be available in most bookstores. Her book Living Well With Hypothyroidism empowered millions of hypothyroid patients, helping them to understand their health problems and to find effective treatment. Now, through Living Well With Autoimmune Disease, Mary will help millions of patients with this disease.

This book, like Living Well With Hypothyroidism, is chock full of information of practical value for patients from experts in autoimmune disease. In the book, Mary covers Lupus, Sjögren's Syndrome, Thyroid, Addison's, Premature Ovarian Failure, Insulin-dependent Diabetes, Chronic Fatigue, Fibromyalgia-Fibromyositis, Alopecia, Psoriasis, Irritable Bowel, Rheumatoid Arthritis, Multiple Sclerosis, Raynaud's Autoimmune Hepatitis, and other autoimmune diseases. We are happy that Mary interviewed us for the book about our beliefs on improving the status of patients with autoimmune disease.

We strongly endorse Living Well With Autoimmune Disease, especially for those with autoimmune thyroid disease.

Jane Jones, RN Becomes
Research Coordinator of FRF

This August, the Board of Directors of the Fibromyalgia Research Foundation (FRF) elected Jane Jones, RN to the position of "Communications and Research Coordinator." Having this job filled is extremely important to FRF. It will enable us now to move forward at a faster rate with our research and education missions.

Filling Jane’s position with FRF took us a long time. The reason is that the position requires an extremely special person. We are happy we finally found that person, and we're delighted that Jane is now a member of the FRF team.

Drs. Lowe & Honeyman-Lowe Write Chapter for 
Widely-Read Book for Clinicians

In August, Dr. Lowe and Dr. Honeyman-Lowe completed a revised and updated version of their chapter on metabolic rehab for the 2nd edition of Fibromyalgia Syndrome: A Practitioner’s Guide to Treatment. The Editor of the book is Leon Chaitow, N.D., D.O. Dr. Chaitow is Practitioner and Senior Lecturer, Centre for Community Care and Primary Health, University of Westminster, London, UK.

The book is a useful alternative to most other books on fibromyalgia. Most books on fibromyalgia for clinicians mainly promote drug treatments to control the symptoms of fibromyalgia. Most books for patients only promote ways to learn to live with the symptoms. Patients and doctors alike often say that reading these other books leaves them with overwhelming feelings of hopelessness and despair. Such is the legacy of the conventional medical and rheumatology approach to fibromyalgia.

Dr. Chaitow’s book contrasts well with these other books. The chapters in his book provide clinicians with practical methods for treating fibromyalgia patients. The methods can improve the status of patients without the drugs that complicate and worsen their fibromyalgia symptoms. Dr. Lowe and Dr. Honeyman-Lowe's chapter, of course, describes a method that can completely and lastingly relieve patients of their symptoms.

The new information Dr. Lowe and Honeyman-Lowe added to the chapter is classified as "ancillary" treatments. These treatments complement the other therapies they wrote about in the first edition of the book—thyroid hormone, nutritional supplementation, diet modification, exercise to tolerance, and physical treatments. The ancillary treatments are for health problems that occasionally cause a person with normal thyroid function to meet the criteria for fibromyalgia, but more often compound or complicate "fibromyalgia" symptoms caused by  hypothyroidism or thyroid hormone resistance. The treatments they added to the chapter are for blood sugar irregularities, sex hormone imbalances, and decreased adrenal reserve or adrenal deficiency.

Churchill Livingstone publishes Fibromyalgia Syndrome: A Practitioner’s Guide to Treatment. The 2nd edition will be available in June 2003. The 1st edition is still available. For information on the book, see the addresses below.

For people in the US:

http://us.elsevierhealth.com/fcgi-bin/displaypage.pl?isbn=0443062277
http://us.elsevierhealth.com/fcgi-bin/displaypage.pl?isbn=0443062277

For people in UK/Europe/Middle East & South Africa:
http://intl.elsevierhealth.com/catalogue/title.cfm?ISBN=0443062277
http://intl.elsevierhealth.com/catalogue/title.cfm?ISBN=0443062277

Negotiations to Study Blood Coagulation 
in Fibromyalgia Patients

As Director of Research of the Fibromyalgia Research Foundation (FRF), Dr. John C. Lowe is negotiating to conduct an independent study of blood coagulation in fibromyalgia patients. A research group recently reported finding excess blood coagulation in patients with fibromyalgia. Some companies have recently sold products that reduce the patients’ blood coagulation rate. The companies report that the treatment improves patients' fibromyalgia status. What's missing is an independent study to confirm or deny these reports.

Dr. Lowe has been communicating with Dr. Nicholas Calvino and Dr. Harry Harrison of Hemex Labs about FRF researchers designing and conducting the study. The study will have two phases. In the first, researchers will test the blood coagulation rate of both fibromyalgia patients and normal control subjects. (Control subjects will be people who don’t have fibromyalgia and don't have a high coagulation rate.) In this phase, the aim will be to learn whether under blinded conditions fibromyalgia patients’ coagulation rate differs from that of control subjects.

If fibromyalgia patients do have excess blood coagulation, FRF researchers will move forward with the second phase of the study. In this phase, the researchers will test the effectiveness of a coagulation-reducing product on the fibromyalgia status of patients. 

This study is important to FRF researchers. The reason is that if the blood of fibromyalgia patients coagulates at a high rate, this will be a piece of evidence against Dr. Lowe's hypothesis of the major cause of most patients’ fibromyalgia. His hypothesis proposes that most fibromyalgia patients have too little thyroid hormone regulation, due either to hypothyroidism or thyroid hormone resistance. Hypothyroid patients' coagulation rate has been found to be reduced. So if fibromyalgia patients in the study have excess coagulation, this will suggest that Dr. Lowe's thyroid hypothesis is wrong. If, however, the coagulation rate is less than normal, this will support Dr. Lowe's hypothesis.

Advocate of Dr. St. Amand
Apologizes to Dr. Lowe to Avoid Libel Suit

August 5, 2002

On June 22, 2002, an advocate of Dr. Paul St. Amand sent an e-mail to several people. In her e-mail, the advocate, Mrs. Sharon Jungert, made libelous accusations against Dr. John C. Lowe. Due to action Dr. Lowe took, Mrs. Jungert has now apologized to him and admitted that she had no grounds for her accusations. We've provided a page containing the full communications involved in this unfortunate incident.

Let’s Live Magazine Publishes Article
on Our Research and Clinical Care

Dr. John C. Lowe

Let’s Live magazine has published an article in its July issue on our research and clinical practice. The article was written by award-winning medical and health writer Jim Scheer. His article gives our work wide exposure. Let’s Live, published by General Nutrition Centers, has a circulation of 1,700,000. In the article, Jim explains that the TSH is not the Gold Standard for diagnosing and treating hypothyroidism, despite the endocrinology specialty's propaganda that it is. He also explains that fibromyalgia symptoms are caused mainly by untreated or under-treated hypothyroidism or thyroid hormone resistance. In addition, he describes the effective treatment we've developed for patients with fibromyalgia symptoms. We very much appreciate Jim writing the article.

Vicky Massey, LMT:
Appointed to Advisor Board of the
Fibromyalgia Research Foundation

Dr. John C. Lowe

On July 8, 2002, the Board of Directors of the Fibromyalgia Research Foundation (FRF) enthusiastically appointed Vicky Massey, LMP to its Board of Advisors. Vicky is a licensed massage therapist who practices in Puyallup, Washington state, USA. Her appointment as Advisor in Massage Therapy fills a void in the FRF Advisory Board; up to this point, the Board didn’t have an advisor in massage therapy.

Vicky is perfect for the Advisory position. She returned to school and became a massage therapist after undergoing metabolic rehabilitation and recovering from eleven years of debilitating fibromyalgia symptoms due to under-treated hypothyroidism. Since she graduated and obtained her license, she’s continually undergone advanced postgraduate education and training. She’s also distinguished herself as an unusually knowledgeable and highly skilled therapist. She's particularly attuned to the special needs of patients with fibromyalgia symptoms, and her accurate and thorough knowledge of metabolic rehab makes her an especially valuable practitioner for patients with hypothyroidism or thyroid hormone resistance, regardless of their diagnosis. We’re proud to have Vicky on our Board and thank her for taking part in FRF’s mission."

Official Statement of the
Fibromyalgia Research Foundation
Condemns T4 Replacement Therapy
as
Obstacle to Recovery from Fibromyalgia

On Sunday, April 28, 2002, Lyn Mynott, Chairperson of Thyroid UK, was to read an official statement of the Fibromyalgia Research Foundation (FRF) at a meeting of the Medical Advisory Board for the All Parliamentary Group. The title of the statement is "T4 Replacement Therapy: An Obstacle to Recovery from Fibromyalgia." The meeting was part of the Fibromyalgia Association Conference, held at the Harrogate Conference Center, Harrogate, United Kingdom. The FRF statement condemns T4 replacement therapy as an obstacle to patients' recovery from fibromyalgia. The signatories to the statement were Dr. LoweDr. Honeyman-Lowe, and Jackie Yellin, representatives of FRF.

At the meeting, Lyn Mynott began reading a brief introductory statement by FRF. Karen Goodfellow (Research Development Officer of Thyroid UK) provided attendees with a full written version of the statement. The statements contain the official conclusions of FRF on T4 replacement therapy. The statements are based on the assessment of thousands of published scientific studies and on several types of studies conduced by FRF researchers and others.

Despite the sound scientific basis of FRF's official statement, some members of the Medical Advisory Board walked out of the meeting during Lyn's presentation. As they were leaving, they stated that they would listen only when shown the results of randomized double-blind, placebo-controlled studies. Had these members bothered to wait and read FRF's official statement, they'd have learned that the types of controlled studies they demanded have already been done. FRF researchers published three such studies in 1997. Dr. Jacob Teitelbaum and colleagues published another such study in 2001. Dr. Teitelbaum was present at the meeting to discuss the 2001 study—a randomized double-blind, placebo-controlled treatment trial. He was for all practical purposes ignored by the departing doctors when he asked them what the problem was.

On May 8, 2002, Lyn and Karen presented copies of FRF's official statement at the meeting of the All Party Parliamentary Group in the House of Commons. We provide the full text of FRF's brief introductory statement and its full statement for readers of drlowe.com.

 Advance to Publish Article
on Metabolic Rehab

The magazine titled Advance for Directors of Rehabilitation has commissioned Dr. John C. Lowe to write an article on metabolic rehab. Advance is a widely read magazine providing news and educational information for specialists in the field of rehabilitation, including management-level professionals. Rehab specialists who read the magazine include physical therapists, occupational therapists, and physiatrists (physicians who specialize in physical medicine and rehabilitation). Dr. Lowe and Dr. Honeyman-Lowe were asked to write the article after Assistant Editor Tisha Nickenig interviewed them in March 2002 for an article on fibromyalgia. The article on metabolic rehab will appear in a forthcoming issue of Advance.

Open House

The Center for Metabolic Health will co-host an Open House with its neighbors Jim Bowen, MA, LPC, CMT and Antonia Johnson, Ph.D. on 


Friday, May 3, 2002
4:00 to 7:00 PM

1800 30th Street, Suite 216
Boulder, CO 80301

Map to Center

Please stop by anytime between 4:00 and 7:00 PM for information, refreshments (food, wine, and other beverages), and to meet Dr. Gina Honeyman-Lowe, Dr. John C. Lowe, and Jennilea Ambrester (Office Manager).

Dr. Honeyman-Lowe and Dr. Lowe will give a short presentation on metabolic health and metabolic rehab at about 5:30 PM. For more information, please contact Tammy at (603) 391-6061 Monday through Thursday, 9 AM to noon, or send an e-mail to Tammy@drlowe.com.